Wednesday, July 6, 2011

Save the Cherubs Posters - Braden Holt

CDH survivor Braden Holt!  A model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!


Photo by Ted Brooks.


Photo by Shana Kelly
Cafepress Items - http://www.cafepress.com/cherubs/7876835

CHERUBS 2011 Volunteer Ceremony

 


At our 2011 Congenital Diaphragmatic Hernia Conference, we presented awards to our volunteers and fundraisers.  Those not present at the ceremony will be receiving their certificates / awards in the mail.

We would like to congratulate the following (in alphabetical order):


2011 Volunteers of the Year:
  • Tara Hall
  • Tracy Meats
  • Barbara Wagner


Our May, 2010 - April, 2011 Volunteers:
  • Sarah Deskins-Baker
  • Ashley Barry
  • Steph Burton
  • Nicolle Colvin
  • Erin Fisher
  • Kara Gleeson
  • Freedom Green
  • Rebecca Falkinham
  • SanJuanita Fuentes
  • Tara Hall
  • Joshua Hensley
  • Kara Hess
  • Karla Holt
  • Brenda Johnson
  • Jessica Johnston
  • Rikke Jul
  • Shana Kelly
  • Tracy Landers
  • Melissa Larrison
  • Elizabeth Lopez
  • DeAnn McGilberry
  • Tracy Meats
  • Troy Miller
  • Elaine Moats
  • Shankari Murali
  • Karen Myers
  • Heidi Pehrson
  • Wendy Petty
  • Michelle Rogers 
  • Cheryl Sandoval
  • Darlene Silverman
  • Brenda Slavin
  • Jaquetta Taborn
  • Jennifer Tenney
  • Barbara Wagner
  • Chris Weaver


 

2011 Top Fundraisers:
  • Aguirre Family
  • Nicolle Colvin
  • Sarah Anderson
  • Gene & Becky Hobbs
  • Rebecca Reyes-Falkinham
  • Kidd-Ward Family
  • Julie Tunnell
  • Barbara Wagner


Thank you all for all your hard work and dedication to our charity and to families of babies affected by Congenital Diaphragmatic Hernia!   Without you, CHERUBS and our services to CDH families would  not be possible.  Your determination and compassion have helped 1000's of families devastated by CDH and we are very appreciative for all you have done and continue to do in honor / memory of your own cherubs. 




Would you like to join our wonderful team of volunteers?   Learn more at http://www.cdhvolunteers.org


Monday, October 25, 2010

News 14 Carolina Coverage

News 14 Carolina did an interview today about our Masquerading Angels Ball! 

In Depth: Dawn Williamson, Cherubs

An event this weekend will help unmask the cause of a life-threatening condition among children that doesn't get a lot of attention. It's called congenital diaphragmatic hernia or CDH and News 14 Carolina's Tracey Early sits down with Dawn Williamson, the founder and president of the non profit group "Cherubs," to talk about this year's event.

In Depth: Dawn Williamson, Cherubs

Sunday, October 10, 2010

Meet Our Volunteers - Karen Myers

Karen Myers

Karen MyersKaren Myers, is the mother to Kaleigh Marie who was born on 30 July 2002. She was born at Wilford Hall Medical Center, in San Antonio TX, after learning at 20 weeks gestation she would be born with a left sided Congenital Diaphragmatic Hernia. She spent 10 days on ECMO and had her CDH repair on her 15th day of life. During her repair her spleen cracked and that had to be repaired as well. Unfortunatley she passed away when she was 17 days old, the pulmonary hypertension proved to be to much for her. I am also the mother to another angel, William Logan, who was stillborn on 27 May 2005, at 27 weeks gestation, due to non-immune hydrops fetalis. After much testing and genetics couseling it was deemed that there was no connection between the CDH and Hydrops we just got struck by 2 different lighting bolts. They are buried sde by side at the National Cemetary in Biloxi Mississippi where my husband and I will be layed to rest with them one day.

I am also the mother to 3 other beautiful children. Alec, who will be 18 soon and off to college. Aubrey, who is 6 and loving the 1st grade and Jackson, who is 18 months and into everything. I also have a wonderful husband, Will, who is active duty Air Force and I am a stay at home mom. We currently reside in San Antonio Tx but move when the Military says so. I have been a member of CHERUBS since finding out about Kaleighs CDH and wouldn't be the somewhat sane person I am today with out all of the volunteers love and support over the years as well as all the wonderful parents I have met along the way who journey through this horrible defect together.


Meet Our Volunteers - Dawn Williamson

Dawn Williamson
Dawn M. Williamson

Dawn is the mom of Shane Torrence (1/28/93-9/11/99). Shane was born with left-sided CDH, ASD, hypospadius, pulmonary sequestration, descended testes, and multiple other birth defects. Shane spent his first 10 months in the PICU at Duke University Medical Center and many more hospitalizations at the University of North Carolina at Chapel Hill. He had a trach for 3 years while he was on a ventilator for 2 years and oxygen for 2 and a half years. He also had a Mic-Key feeding tube, hearing aids, oral aversions, developmental delays and textile aversions. He suffered multiple complications including 6 CDH repairs, pulmonary hypertension, blindness for a year, hearing impairment, Cerebral Palsy, multiple blood infections and pneumonia and was lost to a very rare case of gastropleural fistula at age 6 and a half.

Dawn is also the founder and President of CHERUBS. She is married to her wonderful husband, Craig, and they have 2 boys; 14-yr-old twins Braden and Garret. Going back to school to learn more about how to help our charity, she has a 4.0 in college while taking such courses as Biology, Anatomy, Medical Terminology, Business, Web Development, Public Speaking and more. She also works full-time as a web designer and graphic artist and is active in her community and church.


How To Volunteer

How To Volunteer At CHERUBS

We always need more volunteers at CHERUBS!   There are always new members, new projects, new services  and we always want to be creative and productive.  We have a wonderful, wonderful group of volunteers who only want to help other families affected by CDH.  We invite you to join our volunteer family!


Adopt A Cherub5 Easy Steps To Volunteer!

1.  Read over the Volunteer Roles to see what each position does.

2.  Read over the Volunteer Checklist to see if you're ready to work directly with other CDH parents or in another capacity.

3. E-mail us at volunteer@cherubs-cdh.org.org and give us the following information:
  • Your Name
  • Your Address
  • Your Phone Number
  • Your E-mail Address
  • Your Cherub's Name and Date(s)
  • Which volunteer positions would you like to volunteer for?
4.  Read, print, sign and mail the following 3 documents back to our home office at CHERUBS, 3650 Rogers Rd #290, Wake Forest, NC 27587, USA.
5.  We'll contact you shortly!  Thank you for volunteering to help CHERUBS help families affected by CDH!

Volunteering at CHERUBS

Congenital Diaphragmatic Hernia Volunteers

CHERUBS is proud to work with dozens of amazing people who give generously of their time and talents to help the CDH community.   Learn how you too can help families affected by Congenital Diaphragmatic Hernia.




Easy Ways To Volunteer - the following volunteer positions need sign no paperwork or follow formalities.  Simply do what you can and send in your work / donations:

  • Knitters & Crocheters - knit or crochet baby blankets, booties or baby hats for our CDH HOPE Totebag Program
  • Translators - translate our downloadable CDH materials so that we can better help families of all languages
  • CDH Library Volunteers - help us create a valuable source of information simply by submitting links to CDH research articles


Great Ways To Honor / Remember Your Cherub - looking to do a litle more but don't want to commit to a volunteer position?   This is the


CHERUBS Volunteer Staff  - no one at CHERUBS receives a salary.   We are run by CDH parents, grandparents, survivors and researchers who simply want to help CDH families.
  • Our Board Members - The parents and medical professionals that make up our Board of Directors
  • Advisory Committee - Our group of parents that help advise us on new ideas and problems
  • Our President- The person who answers the phone, does the mail, and various other duties
  • Volunteer Coordinator - The people who help organize and rally our volunteers
  • Newsletter Editor- Our newsletter proofreader, organizer and editor


Local Support Services - volunteers that help CDH families on International, State and Local Levels
  • State & International Representatives  - Contact your state or international Representative for information on local resources
  • Hospital Angels - Be an on-call person for your local CDH hospital

CHERUBS Committee Volunteers - our projects wouldn't succeed without the help of our committee members
  • Research Committee - Doctors and parents who help us with our CDH Survey Results
  • Conference Committee - Members that help us plan and organize our annual conferences
  • Welcoming Committees - Volunteers that help other parents learn to use our on-line services
  • Translators - Need help translating our materials?  These people can help
  • Fundraising Committee - The people that come up with ideas to raise money to keep us going
  • Card / PM Committee - Volunteers that send out birthday, memorial, and holiday messages 
  • Grant Committee - The volunteers that search for organizations to help fund us
  • On-Call Committee - Need someone to talk to?  Our On-Call Parents are ready to lend an ear
  • Awareness Committee - The people that lead the world's largest CDH organization in raising awareness of CDH
  • Book Committee - Volunteers working on several books to help CDH families